Leisure Education and Leisure Counseling in Adult Stroke: A Systematic Review

Authors

  • Heather R. Porter Temple University
  • Hannah Goodno Innovage LIFE.
  • Nicholas Wahl Sunset Manor and Villages Retirement Community
  • Emily Bowman Oklahoma City Veteran's Administration Healthcare System
  • Chelsea Titlow Special People in the Northeast
  • Ashley Opitz Rutgers University
  • Grace Maher Special People in the Northeast
  • Isabel Swingle Temple University
  • Stephanie Roth Temple University

DOI:

https://doi.org/10.18666/TRJ-2023-V57-I2-11775

Keywords:

leisure education, leisure counseling, leisure participation, leisure satisfaction, stroke

Abstract

Engagement in leisure is difficult for many community-dwelling adults post-stroke, resulting in increased sedentary and solitary leisure activity, and reduced leisure engagement and satisfaction. This, in turn, impacts long-term recovery, health, and quality of life. The aim of this study is to review the efficacy of in-home and community-based leisure education and leisure counseling on meaningful activity engagement and health outcomes for this population. A systematic review of the literature from 2005-2020 resulted in 2,017 references of which 3 met the inclusion criteria. Findings indicate that leisure education and leisure counseling improved quality of life, leisure satisfaction, autonomous leisure engagement, leisure competence, depression, and perceived barriers and opportunities. Clinical implications and future research recommendations are provided.

Author Biography

Heather R. Porter, Temple University

Professor
Temple University
Department of Rehabilitation Sciences

References

Anderson, L. S. (2020). Leisure education from an ecological perspective: Inclusion and advocacy in community leisure. Leisure/Loisir, 44(3), 353–373.

Aam, S., Einstad, M.S., Munthe-Kaas, R., Lydersen, S., Ihle-Hansen, H., Knapskog, A., Ellekjaer, H., Seljeseth, Y., & Saltvedt, I. (2020). Post-stroke cognitive impairment - impact of follow-up time and stroke subtype on severity and cognitive profile: The Nor-COAST Study. Frontiers in Neurology, 11(699), 1-10.

American Heart Association (2022). U.S. stroke rate declining in adults 75 and older, yet rising in adults 49 and younger. Retrieved from https://newsroom.heart.org/news/u-s-stroke-rate-declining-in-adults-75-and-older-yet-rising-in-adults-49-and-younger

Ashe, M. C., Miller, W., Eng, J. J., Noreau, L., & Physical Activity and Chronic Conditions Research Team. (2009). Older adults, chronic disease and leisure-time physical activity. Gerontology, 55(1), 64–72.

Ayala, C., Fang, J., Luncheon, C., King, S. C., Chang, T., Ritchey, M., & Loustalot, F. (2018). Use of outpatient rehabilitation among adult stroke survivors—20 states and the District of Columbia, 2013, and four states, 2015. Morbidity and Mortality Weekly Report, 67(20), 575–578.

Boosman, H., Schepers, V. P. M., Post, M. W. M., & Visser-Meily, J. M. A. (2011). Social activity contributes independently to life satisfaction three years post stroke. Clinical Rehabilitation, 25, 460–467.

Carbonneau, H. (1995). Programme d` èducation aux loisirs. Sherbrooke, Qc: Centre d`expertise de I`Institut universitaire de gèriatrie de Sherbrooke.

Carlsson, G. E., Forsberg-Warleby, G., Moller, A., & Blomstrand, C. (2007). Comparison of life satisfaction within couples one year after a partner’s stroke. Journal of Rehabilitation Medicine, 39(3), 219–224.

Centers for Disease Control and Prevention. (2022). Stroke facts. Centers for Disease Control and Prevention. Retrieved from https://www.cdc.gov/stroke/facts.htm

Department of Veterans Affairs and Department of Defense. (2010). VA/DoD clinical practice guideline for the management of stroke rehabilitation. Journal of Rehabilitation Research and Development, 47(9), 1–43.

Department of Veterans Affairs and Department of Defense. (2019). VA/DoD clinical practice guidelines for the management of stroke rehabilitation. Department of Veterans Affairs and Department of Defense.

Desrosiers, J., Noreau, L., Rochette, A., Carbonneau, H., Fontaine, L., Viscogliosi, C., & Bravo, G. (2007). Effect of a home leisure education program after stroke: A randomized controlled trial. Archives of Physical Medicine & Rehabilitation, 88(9), 1095–1110.

Dijkers, M.P., Hart, T., Tsaousides, T., Whyte, J., & Zanca, J.M. (2014). Treatment taxonomy for rehabilitation: Past, present, and prospects. Archives of Physical Medicine and Rehabilitation, 95(1 Suppl 1), 56-16.

Edwards, P. B., & Bloland, P. A. (1980). Leisure counseling and consultation. Personnel and Guidance Journal, 58(6), 435–440.

English, C., Manns, P. J., Tucak, C., & Bernhardt, J. (2014). Physical activity and sedentary behaviors in people with stroke living in the community: A systematic review. Physical Therapy, 94(2), 185–196.

Field, M. J., Gebruers, N., Sundaram, T. S., & Nicholson, S. (2013). Physical activity after stroke: A systematic review and meta-analysis. ISRN Stroke, 2013, 1–13.

GBD 2019 Stroke Collaborators (2021). Global, regional, and national burden of stroke and its risk factors, 1990-2019: A systematic analysis for the Global Burden of Disease Study 2019. The Lancet Neurology, 20(10), 795-820.

Graven, C., Brock, K., Hill, K., & Joubert, L. (2011). Are rehabilitation and/or co-ordination interventions delivered in the community effective in reducing depression, facilitating participation and improving quality of life after stroke? Disability & Rehabilitation, 33(17–18), 1501–1520.

Halpern, S. H., & Douglas, M. J. (2005). Evidence-based obstetric anesthesia. Blackwell Publishing Ltd.

Harris, J. E., & Eng, J. J. (2004). Goal priorities identified through client-centred measurement in individuals with chronic stroke. Physiotherapy Canada, 56(3), 171–176.

Hartman-Maeir, A., Soroker, N., Ring, H., Avni, N., & Katz, N. (2007). Activities, participation and satisfaction one-year post stroke. Disability & Rehabilitation, 29(7), 559–566.

Hebblethwaite, S. (2016). Grandparents' reflections on family leisure, "It keeps family together". Journal of Leisure Research, 48(1), 69-82.

Hebert, D., Lindsay, M. P., McIntyre, A., Kirton, A., Rumney, P. G., Bagg, S., Bayley, M., Dowlatshahi, D., Dukelow, S., Garnhum, M., Glasser, E., Halabi, M., Kang, E., MacKay-Lyons, M., Martino, R., Rochette, A., Rowe, S., Salbach, N., Semenko, B., … Teasell, R. (2016). Canadian stroke best practice recommendations: Stroke rehabilitation practice guidelines, update 2015. International Journal of Stroke, 11(4), 459–484.

Hildebrand, M., Brewer, M., & Wolf, T. (2012). The impact of mild stroke on participation in physical fitness activities. Stroke Research and Treatment, 2012, 1–7.

Hodge, C., Bocarro, J.N., Henderson, K.A., Zabriskie, R., Parcel, T.L., & Kanters, M.A. (2015). Family leisure: An integrative review of research from select journals. Journal of Leisure Research, 47(5), 577-600.

Hutchinson, S. L., & Shannon, C. S. (2020). Innovations in leisure education: Revisiting and reimagining leisure education. Leisure/Loisir, 44(3), 307–316.

Ihle, A., Oris, M., Baeriswyle, M., Zuber, S., Cullati, S., Maurer, J., & Kliegel, M. (2021). The longitudinal relation between social reserve and smaller subsequent decline in executive functioning in old age is mediated by cognitive reserve. International Psychogeriatrics, 33(5), 461-467.

Janke, M. C., Payne, L. L., & Son, J. S. (2020). Leisure education in chronic disease self-management: A case study and lessons learned. Leisure/Loisir, 44(397–420).

Liu-Ambrose, T., & Eng, J. J. (2015). Exercise training and recreational activities to promote executive functions in chronic stroke: A proof-of-concept study. J Stroke Cerebrovasc Dis, 24(1), 130–137. https://doi.org/10.1016/j.jstrokecerebrovasdis.2014.08.012

Magwood, G.S., Nichols, M., Jenkins, C., Logan, A., Qunango, S., Zigbuo-Wenzler, E., & Ellis, C. (2020). Community-based interventions for stroke provided by nurses and community health workers: A review of the literature. Journal of Neuroscience Nursing, 52(4), 152-159.

McKenna, K., Liddle, J., Brown, A., Lee, K., & Gustafsson, L. (2009). Comparison of time use, role participation and life satisfaction of older people after stroke with a sample without stroke. Australian Occupational Therapy Journal, 56, 177–188.

National Clinical Guideline Centre. (2013). Stroke rehabilitation: Long term rehabilitation after stroke, clinical guideline 162. National Clinical Guideline Centre.

National Institutes of Health. (n.d.). Quality Assessment Tool for Before-After (Pre-Post) Studies with No Control Group.

Nour, K., Desrosiers, J., Gauthier, P., & Carbonneau, H. (2002). Impact of a home leisure educational program for older adults who have had a stroke (Home Leisure Educational Program). Therapeutic Recreation Journal, 36(1), 48–64.

Obembe, A. O., & Eng, J. J. (2016). Rehabilitation interventions for improving social participation after stroke: A systematic review and meta-analysis. Neurorehabilitation & Neural Repair, 30(4), 384–392.

Olivo, S. A., Macedo, L. G., Gadotti, I. C., Fuentes, J., & Magee, D. J. (2008). Scales to assess the quality of randomized controlled trials: A systematic review. Physical Therapy & Rehabilitation Journal, 88(2), 156–175.

Peterson, C. A., & Gunn, S. L. (1977). Leisure counseling: An aspect off leisure education. Journal of Physical Education and Recreation, 48(4), 29–30.

Porter, H., Hawkins, B., & Kemeny, B. (2019). ATRA’s competencies in recreational therapy practice: Results from the 2019 ATRA Delphi and Competencies Study. American Therapeutic Recreation Association.

Porter, H., Iwasaki, I., & Shank, J. (2010). Conceptualizing meaning-making through leisure experiences. Society and Leisure, 33(2), 157-194.

Ragheb, M.G. & Beard, J.G. (1991). Leisure Attitude Measurement. Idyll Arbor, Inc: Bedford, IN

Rand, D., Eng, J. J., Tang, P., Hung, C., & Jeng, J. (2010). Daily physical activity and its contribution to the health-related quality of life of ambulatory individuals with chronic stroke. Health & Quality of Life Outcomes, 8(80), 1–8.

Ryan, C. A., Stiell, K. M., Galley, G. F., & Makinen, J. A. (2008). Evaluating a family centered approach to leisure education and community reintegration following a stroke. Therapeutic Recreation Journal, 42(2), 119–131.

Sarkamo, T. (2018). Music for the ageing brain: Cognitive, emotional, social, and neural benefits of musical leisure activities in stroke and dementia. Dementia, 17(6), 670–685.

Schnitzler, A., Jourdan, C., Josseran, L., Azouvi, P., Jacob, L., & Genet, F. (2019). Participation in work and leisure activities after stroke: A national study. Annals of Physical and Rehabilitation Medicine, 62(5), 351–355.

Sit, J. W. H., Chan, A. W. H., So, W. K. W., Chan, C. W. H., Chan, A. W. K., Chan, H. Y. L., Fung, O. W. M., & Wong, E. M. L. (2017). Promoting holistic well-being in chronic stroke patients through leisure art-based creative engagement. Rehabilitation Nursing, 42(2), 58–66. cin20. https://doi.org/10.1002/rnj.177

Sveen, U., Thommessen, B., Bautz-Holter, E., Wyller, T. B., & Laake, K. (2004). Well-being and instrumental activities of daily living after stroke. Clinical Rehabilitation, 18(3), 267–274.

U.S. Department of Health and Human Services. (2018). Physical activity guidelines for Americans, 2nd edition. U.S. Department of Health and Human Services. https://health.gov/sites/default/files/2019-09/Physical_Activity_Guidelines_2nd_edition.pdf

Winstein, C. J., Stein, J., Arena, R., Bates, B., Cherney, L. R., Cramer, S. C., Deruyter, F., Eng, J. J., Fisher, B., Harvey, R. L., Lang, C. E., MacKay-Lyons, M., Ottenbacher, K. J., Pugh, S., Reeves, M. J., Richards, L. G., Stiers, W., & Zorowitz, R. D. (2016). Guidelines for adult stroke rehabilitation and recovery: A guideline for healthcare professionals from the American Heart Association/American Stroke Association. Stroke, 47(6), e98–e169.

Wolf, T. J., Baum, C. M., Lee, D., & Hammel, J. (2016). The development of the Improving Participation after Stroke Self-Management Program (IPAAS): An exploratory randomized clinical study. Topics in Stroke Rehabilitation, 23(4), 284–292.

Wong, A., Lau, A., Lo, E., Tang, M., Wang, Z., Liu, W., Tanner, N., Chau, N., Law, L., Shi, L., Chu, W. C. W., Yang, J., Xiong, Y., Lam, B. Y. K., Au, L., Chan, A. Y. Y., Soo, Y., Leung, T. W. H., Wong, L. K. S., … Mok, V. C. T. (2016). Relations between recent past leisure activities with risks of dementia and cognitive functions after stroke. PLoS ONE, 11(7), 1–11.

Yi, T. I., Han, J. S., Lee, K. E., & Ha, S. A. (2015). Participation in leisure activity and exercise of chronic stroke survivors using community-based rehabilitation services in Seongnam City. Annals of Rehabilitation Medicine, 39(2), 234–242.

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Published

2023-05-09

Issue

Vol. 57 No. 2 (2023)

Section

Research Papers

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